Engagement & Communication for Non-apparent Disabilities

Engagement and Communication Practices with Persons who have Non-apparent Disabilities

Disability engagement and communication requires some planning and thought, especially when you are working toward being a church where everyone feels welcome and a sense of belonging. Many people have not thought about ways to make interactions with those of us who are disabled easier and more relaxed. To start with, remember that each person is unique and all of us are made in the image of God. If you encounter a disabled person who may need assistance, ask if help is wanted and exactly how you can help.

What is a non-apparent (invisible) disability?

This category includes everything that cannot be easily detected by looking at a person. Examples include back injuries, mental illness, chronic pain or fatigue, debilitating medical conditions (e.g., heart and lung disease, arthritis), brain injuries, epilepsy, dementia, vision or hearing loss, learning disabilities, and autism.

When you are with a person who has a non-apparent disability:

  • Never ask a person what their disability or diagnosis is.

  • If they disclose that they are having difficulty, ask what support they need.

  • Recognize that the condition may be a source of significant fatigue and cause brain fog, dizziness, pain, or nausea.

  • Normal touch by another person may cause discomfort or pain.

  • Accept each person’s lived experience as real and valid.

  • Never assume that anyone is “faking” their disability or condition.

  • Avoid trite phrases such as “It can’t be that bad” and “look on the bright side” that minimize their situation.

  • Understand that the person will have good and bad days and may not be able to predict when they can participate or not. Keep appointments flexible.

  • Saying “but you don’t look disabled” or “but you look so good” is never helpful.

For more information:

March 2024, Rev. Debbie Hills, Deaconess Lynn Swedberg, & Tim Vermande